The Last Post.

Theres always going to be something to write about, because its always one thing after another. As much as writing about it makes me feel better and sharing things with everyone seems to help others, I seem to be writing more and more in my own books more personally. Therefore, this will be my last post. 

Over the last 2 years I have learnt so much and I don't just mean about the classification of different medications or my way around several different hospitals. I mean about life and how happiness is found in the smallest of things. Not taking anything for granted and wanting to live in the moment. Most of all I've learnt that after all the bad days I can still pick myself up at the end and be happy with what I have.

I don't know what life is going to bring me next, I don't know if my arthritis will worsen, I still live knowing that one day it could attack my internal organs or that I may contract a serious infection or illness that I wont be able to fight. But looking around and realising the support that I have, I don't have to live in fear. Every person that takes my hand and tells me they'll be there for me, or asks me how I am or simply says "we wont go out tonight, put your feet up and i'll stay with you" makes every day easier to live. Surround yourself with these people and laugh at the ones who laugh at you.

I don't know what's going to happen next but seeing how life has gone already, I don't want to miss much more. I want people to know what they mean to me, I want to grasp every opportunity, I want to feel as good as I can.

Anyway, learn as many lessons as you can from your illness; make a point to having it.

Maybe i'll write one off posts - like the one off shows Gavin and Stacey and all the other programmes do!

But for now. I'm gonna go live and do everything for myself.

Heres hoping for a cure.

Love C xox

Its been a long time since I posted, oops!

Have a had a flare up recently :( Hips hurt so much so that I have been on crutches! Only limit myself to about 2 days on them if I can, otherwise I begin to either rely on them or just refuse to move cause its so much hassle, also my wrists begin to hurt and flare if i stay on them too long! So im hobbling instead - but they're moving so starting to feeeel better, obvs! woooo!

Been to see the OT recently - I have a very bent finger :( which means? NEW SPLINTS. of course..
Unfortunately where it has been bent for so long, my tendons have shortened and so stretching my finger out hurts all the way up my wrist/forearm :( OH WELL. I also was given these sillicon writing pad things to go on my finger because it hurts to write at the momento, eek! Bit of a broken mess atm..

I also have a skin problem! Thought it was Psoriasis but it doesnt have the nature of Psoriasis - it really hurts! :( So waiting to see the Dermatologist in 4 weeks, at another new hospital! The list is getting longer.. Unfortunately its on my mums  birthday, but she didn't seem to fussed about it! I mean surely being in hospital is better than being at work for your birthday, no? Anywhoooo, i'm sure i'll write about that when I find out what it is! Hopefully it will be sorted by summer, cause I want to wear flip flops and tshirts and at the moment i'm just too self concious! Also its spreading on my feet and making it very difficult to walk! Ergh!

What next?!

Hope everyones wellll,

Love C xox

Feeling like a walking zombie! Fatigues getting the better of me lately and i just cant seem to function! Ask me something at the current moment in time and my response will literally just be "yeh whatever".  At least I have a week off from college so me and my bed have been spending some much needed quality time together.

I had what was supposed to be my last ever appointment with my peadatrician team last week - he wants to see me again in 4 months even though everythings going kind of ok.. but I do have an adult rheumy now.. a lady this time! I hear she's very good, so maybe she'll fix me up so that i'm not spending my holidays in bed.

Not much been happening lately, not been too well, ended up in A and E with severe neck pain and then spent the next couple of days vomitting - body cant take the tramadol anymore. Got new glasses aswell! (you know you've got it bad when new glasses excite you :/)

Not much else to say tbh.
I'll post soon with something of more interest I hope.

Love C xox

Bonjour, Guten Tag, Hello,

I have just finished watching some videos from a project I was involved in a while back now.. in a few months I shall be able to share this with you! But for now, i'm gonna have a rant at how angry I am.. cause thats what I do best on here.

I just finished watching them and although it is so inspiring and informative finding out how others cope..and I know that this site is going to HELP so many people because the researcher Dr Ben Simmons has completely caught the right angle on the whole thing and captured nothing but the truth. It kinda angers me at how much arthritis ruins things for people, myself included. I mean most of us are cool with it now, we have our down days but most of the time can handle that... but its just so sad that it ruins peoples dreams and stops them from doing things they enjoy... i dont care how much the doctors give it "you can lead a normal life" A) theres no such thing really is there? and B) no you bloody well cant.
I'd like to see them lead what they think is a "normal" life whilst trying to balance medication, hospital visits, pain and fatigue. Keeping up with an illness and keeping up with an active life is near to impossible!

Anyway the reason it angers me so much is because it ruins lives and yet people still just thinks its some "aches and pains".

IT CHANGES LIVES

Anyway on  another  note, I saw my physio today... dont have to go see her again! She's put me on a discharged sos.. so if I wanna go see her, I can just ring up..otherwise im free! Now I just need to get free from the other physio! Oh life!

I would just like to point out although this seems like a massive moany post, i'm actually currently really happy -  I fell up the stairs and landed on my bad hip today (metal stairs!) I DIDNT EVEN CRY. told you i was happy..

Love C xox